we spoke with a nurse at shriner's hospital who read the doctor's report that said yes, caleb's little water-filled cysts that line part of his spine have increased in size (this is why the MRI was done, to check to make sure the cysts had not grown). not what we were hoping to hear. this means that if these increase in size, they can put pressure on his spine causing headaches & possibly more severe problems...
also he has 2 vertebrae in his spine that are fused together that may cause him trouble as he continues to grow.
the nurse was not sure if the cysts had grown to a point that he needs spinal surgery and also didn't know if the fused vertebrae needed to be separated, but referred us to a spinal surgeon for a consultation & to explain in more detail what's going on.
so long story short...we are heading up to utah for our appointment next thursday and will hear more then. i'm not sure what type of internet access & time i will have to be able to do much blogging, but will do my best to update.
for now, we are staying positive. we are hoping that spine surgery isn't necessary but also are willing to accept it if it is. so far all of caleb's physical complications have been a huge learning & faith-building process. we have felt heavenly father guide us this far and know that no matter what, we will continue to be guided.
overlooking the 2 major tantrums our 3-yr. old has thrown in the past 2 days, this little boy is a blessing. okay okay, i'll even take him with tantrums included. i mean seriously, just look at that face.
22 comments:
the "julie" song came one as soon as I clicked on your blog to leave a comment--thanks for planning that! :)
Good luck with everything, you are in our prayers!
You are in our prayers. Wish we could do more, but we will just have to leave it up to God and the Doctors. My experience with hospitals in Utah lately is that they have excellent Internet access. I took my laptop didn't have any problem. some hospital will offer a computer for families to use. That is nice.
He does have the sweetest face. We wish you and your family the best as you find out more. The Lord is watching over you always and will guide and comfort you in your decisions.
good luck in Utah. We'll be thinking and praying for you! and, he is such a sweet, sweet boy! you are blessed!
Good luck in Salt Lake. Matt and I would love to get together with you sometime, let us know when things have settled down and we'd love to meet up.
I hope you guys know how much you are loved. That little miracle boy IS the cutest thing I've seen in a long time - I've always said that. Good luck. We will be praying.
He definitely is a sweet little boy - adorable!! Nels and I really would like to get together with you while are up in Utah!!! Email me and let me know what your schedule is looking like! We'll be there through Christmas. Even if it's just for a little while, we'd really like to see you!
Good luck with that little boy of yours!
Kali said another little prayer for Caleb tonight...I hope it helps :) Thank you so much for the cheesecake & gift card, you know for only knowing me for such a short time you know EXACTLY what I like. I feel like we have been friends forever. Thanks again :)
Kali said another little prayer for Caleb tonight...I hope it helps :) Thank you so much for the cheesecake & gift card, you know for only knowing me for such a short time you know EXACTLY what I like. I feel like we have been friends forever. Thanks again :)
Good Luck!!! I will keep you in my thoughts and prayers. Even when things are faith promoting experiences and we know our Heavenly Father is aware of our trials/circumstances, our trials are still hard. Know I am thinking of you!!!
When I was prego with Bridger they found a tumor on my spine. I had to have it removed because it was causing me to get numbness in my legs and arms, sometimes I would even fall over. It was really scary. I met some really cool doctors at the huntsman cancer insitute and they did a wonderful job. I have a 8 inch scare, but I am here walking. I know that this is so scary. If you need anything while you are up here in Utah, please let me know.
Hey Lynsey,
Good luck with everything. Are you coming to Shriners up here? My mom works there, you should look her up.
If I remember right, it seemed like you guys have family here, and I know we haven't seen each other in years and we weren't super close in Rexburg (as I was coming and you were going :)) but we live right by Shriner's and Primary Childrens here in SLC (not sure which one you're going to). Anyway, if you need a place to crash, kill time, whatever, our door's open.... literally we're 5 minutes away from both of those hospitals (we live on campus). Our email is emailthewolfleys@gmail.com... good luck!
Good luck with your appointment! We will be thinking of you and praying for Caleb!
OH what a sweet boy! I hope all goes well for you and your baby! I will be praying for him and for the Doctors who will be helping you and your family. We love you guys! Have a Merry Christmas!
Good luck with everything. We pray that all will go well for your family.
You're in our prayers! Hang in there...and keep us posted on what happens! :)
Oh no Lynsey, that isn't what I wanted to read. Good luck with everything. He is too cute to have such a hard time. I am sorry. We will be praying for little Caleb. AND we will definitely be home on christmas eve for some Christmas caroling!!! I am counting down the days!
I think that you are so loved, look at all these people that commented. Good luck. I know I dont really know you, but if you need anything while you are here. please let us know.
I'm sorry to hear all this. Just know you will be in all my happy thoughts! You have all my upbeat support!
We'll be praying for your little guy. That is such an adorable little face
Lyns!! Here is a BIG hug My friend!!! You all are in our prayers. Keep us updated on cute caleb!! We love you! Heath & Dave
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