i was hesitant to post this because really....we don't know much. but i've been asked a couple of times about the outcome of the MRI & this is easier than making a lot phone calls/sending emails. so here is the deal:
we spoke with a nurse at shriner's hospital who read the doctor's report that said yes, caleb's little water-filled cysts that line part of his spine have increased in size (this is why the MRI was done, to check to make sure the cysts had not grown). not what we were hoping to hear. this means that if these increase in size, they can put pressure on his spine causing headaches & possibly more severe problems...
also he has 2 vertebrae in his spine that are fused together that may cause him trouble as he continues to grow.
the nurse was not sure if the cysts had grown to a point that he needs spinal surgery and also didn't know if the fused vertebrae needed to be separated, but referred us to a spinal surgeon for a consultation & to explain in more detail what's going on.
so long story short...we are heading up to utah for our appointment next thursday and will hear more then. i'm not sure what type of internet access & time i will have to be able to do much blogging, but will do my best to update.
for now, we are staying positive. we are hoping that spine surgery isn't necessary but also are willing to accept it if it is. so far all of caleb's physical complications have been a huge learning & faith-building process. we have felt heavenly father guide us this far and know that no matter what, we will continue to be guided.
overlooking the 2 major tantrums our 3-yr. old has thrown in the past 2 days, this little boy is a blessing. okay okay, i'll even take him with tantrums included. i mean seriously, just look at that face.